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About Seventeen22 Foundation 

The name Seventeen22 is directly connected to the chromosomes of the neurofibromatosis gene. The gene for NF1 is located on chromosome 17. The gene for schwannomatosis, which includes NF2-related schwannomatosis, is located on chromosome 22.

Kids Doctor Checkup
Girl at the Pediatrician

Our Mission

Provide assistance to families impacted by neurofibromatosis. 

Our Vision

To provide assistance for families affected by neurofibromatosis so they can concentrate on the things that matter, their loved ones. 

Proud Member of: 


Seventeen22 Foundation


IRS registered 501(c)(3) tax exempt organization.

EIN: 83-2134485


Newsletter Updates

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