Neurofibromatosis, or NF, is a genetic disorder that causes tumors to grow along nerves throughout the body.  There are three different types of NF:  NF1, NF2, and Schwannomatosis.  Each type affects every person differently.  Patients typically see various specialists and seek diverse medical treatments, making it costly, even with  insurance.  Our mission is to help these families with some of these financial costs. 

Why Seventeen22 Foundation? 

The name Seventeen22 is directly connected to the chromosomes of the neurofibromatosis gene. The gene for NF1 is located on chromosome 17. The gene for NF2 and Schwannomatosis is located on chromosome 22.

Our Mission

Provide financial assistance to families impacted by neurofibromatosis. 

Our Vision

To provide financial assistance for families affected by neurofibromatosis so they can concentrate on the things that matter, their loved ones. 

What is neurofibromatosis (NF)? 

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to 3,000 births). The neurofibromatosis affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined.

NF has three genetically distinct forms: NF-1, NF-2 and Schwannomatosis. They are caused by different genes and chromosomes. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for any form of NF, although the genes for both NF-1 and NF-2 have been identified.

NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with Neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.*

(*source Neurofibromatosis Network)

Seventeen22 Foundation


IRS registered 501(c)(3) tax exempt organization.

EIN: 83-2134485