Angela Kramer


As an NF mom, Angela became involved with the NF community 13 years ago when her daughter was diagnosed with NF1.  Over the years, she discovered that there weren't resources available for NF families and so the Seventeen22 Foundation was formed. 

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Katy Wakin

Vice President

Katy has always been an outstanding advocate for NF and she knows first hand how NF impacts families. She has always had a positive outlook on life, despite the roller coaster ride that NF has caused. Katy and her son, Denver, both have NF. 

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Cathie Leys


As a business professional, Cathie brings her forward thinking outlook to the Seventeen22 Foundation.  She is passionate about the cause and the families since one of her 5 grandchildren has NF. 

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Gillian Carpenter


Gillian has been an active pillar in the NF community and has planned many successful events over the years. Being an instrumental part of her niece, who has NF, life simply shows her generous and dedicated spirit. 

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Tera Willhelm

Tera is a recent college graduate and a successful adult living with NF.  She has been active in the community for many years and can relate to how many NF adults feel as they go through difficult times.  Her view on life is remarkable and anybody who knows her knows how much of a joy she is to be around. 

Rick Van Hooser

Being in the nonprofit sector his entire career, Rick brings his professional development experience with him to the Seventeen22 Foundation.  His wife of many years is living with a brain tumor and this drove his passion to become further involved with the NF community. 

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Advisory Board
Danny Guinta
Patty Guinta
Seth Habberfield
Helga Pavlicek
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