Leadership

Angela Kramer

President

As an NF mom, Angela became involved with the NF community 14 years ago when her daughter was diagnosed with NF1.  Over the years, she discovered that there weren't resources available for NF families and so the Seventeen22 Foundation was formed. 

Cathie Leys

Secretary, Treasurer

As a business professional, Cathie brings her forward thinking outlook to the Seventeen22 Foundation.  She is passionate about the cause and the families since one of her 5 grandchildren has NF. 

Seth Habberfield

Director, Challenge Team

Seth became involved with NF when he competed in his first Ironman in 2015. Over the last 6 years Seth has grown to understand NF and all of its parts. He brings unique and "outside the box" fundraising ideas to the table and knows how to connect to athletes.

Wendy Looper

Director, Grant Management

Gillian Carpenter

Director, Events and Fundraising

Patty Guinta

Executive Committee, Events and Fundraising

Danny Guinta

Executive Committee, Events and Fundraising

Tera Willhelm

Executive Committee, Events and Fundraising

Tera is a college graduate and a successful adult living with NF.  She has been active in the community for many years and can relate to how many NF adults feel as they go through difficult times.  Her view on life is remarkable and anybody who knows her knows how much of a joy she is to be around. 

Open Board of Directors positions:

  • Family Outreach and Advocacy

  • Marketing and Social Media

  • Seventeen22 Challenge Team - Executive Committee

  • Events and Fundraising - Executive Committee

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Reach out to info@seventeen22.org for additional information.  

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