Leadership

IMG_1499_edited.jpg

Angela Kramer

President

As an NF mom, Angela became involved with the NF community 14 years ago when her daughter was diagnosed with NF1.  Over the years, she discovered that there weren't resources available for NF families and so the Seventeen22 Foundation was formed. 

Carpenters (2).jpg

Gillian Carpenter

Director, Events and Fundraising

FB profile_seventeen22.png

Jennifer Marrs
Executive Committee, Events and Fundraising

FB profile_seventeen22.png

Cathie Leys

Secretary, Treasurer

As a business professional, Cathie brings her forward thinking outlook to the Seventeen22 Foundation.  She is passionate about the cause and the families since one of her 5 grandchildren has NF. 

FB profile_seventeen22.png

Patty Guinta
Executive Committee, Events and Fundraising

FB profile_seventeen22.png

Cindy Downes
Executive Committee, Events and Fundraising

960B0499-FD49-43CA-ADA1-570C16DE2B5E.jpe

Seth Habberfield

Director, Challenge Team

Seth became involved with NF when he competed in his first Ironman in 2015. Over the last 6 years Seth has grown to understand NF and all of its parts. He brings unique and "outside the box" fundraising ideas to the table and knows how to connect to athletes.

FB profile_seventeen22.png

Danny Guinta
Executive Committee, Events and Fundraising

Wendy.jpg

Wendy Looper

Director, Grant Management

Wendy is the Auntie to a beautiful niece with NF1. Her niece was diagnosed at 3 months. Since that initial diagnosis, she has spent time educating herself and others about NF and helping others find resources. Wendy has also completed multiple athletic events in the honor of her niece who continues to inspire her. 

60341441_10157214724923245_9471395454622

Tera Willhelm
Executive Committee, Events and Fundraising

Tera is a college graduate and a successful adult living with NF.  She has been active in the community for many years and can relate to how many NF adults feel as they go through difficult times.  Her view on life is remarkable and anybody who knows her knows how much of a joy she is to be around. 

Open Board of Directors positions:

  • Family Outreach and Advocacy

  • Marketing and Social Media

  • Seventeen22 Challenge Team - Executive Committee

 

Reach out to info@seventeen22.org for additional information.  

17-22.png