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PHARMA NAVIGATION RESOURCES
NF1 PN
NF1 PN
If you have commercial health insurance, you may pay as little as a $0 copay per 21-day supply of GOMEKLI with the Commercial Copay Program.*
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SpringWorks CareConnections may also help with eligible out-of-pocket costs for certain treatment-related tests, examinations, and/or specialty visits during treatment with GOMEKLI.*
Once you or your loved one is prescribed and ready to start taking Koselugo, you may be eligible to enroll in Alexion's free patient support program called OneSource.
Once you’re enrolled in OneSource, a dedicated Alexion Case Manager is ready to coordinate and help navigate the logistics of starting and staying on treatment.
BOOKS ABOUT NF
Soundtrack of Silence: Love, Loss, and a Playlist for Life is a memoir by Matt Hay about his journey with progressive hearing loss due to Neurofibromatosis type 2 (NF2), a rare genetic disorder that causes tumors to grow on nerves, including those for hearing.
Meet Bryson!
A brave little boy with a special eye who is going to school!
This empowering story gives just a glimpse into how being different is brave and different is cool!
A perfect book to start a conversation about kindness, differences and being proud of who you are.